Data sharing and you
Medical Records & Data Sharing explained
As part of the NHS, Wickham Surgery aims to provide you with the highest quality of health care. To do this we must keep records about you, your health and the care we have provided or plan to provide to you. These records may include;
- Basic details about you such as address, telephone numbers, date of birth, next of kin
- Contact we have had with you such as clinical visits
- Notes and reports about your health
- Details and records about your treatment and care
- Results of x-rays, laboratory tests, etc.
- Relevant information from people who care for you and know you well such as health professionals and relatives
Everyone working for the NHS has a legal duty to keep information about you confidential. We have a duty to maintain full and accurate records of the care we provide to you and keep records about you confidential and secure.
Some information will be held centrally to be used for statistical purposes. In these instances we take strict measures to ensure that individual patients cannot be identified. We use anonymous information, wherever possible, but on occasions we may use personal identifiable information for essential NHS purposes such as research and auditing. We use your records to help us to give you proper healthcare and advice, to manage and plan the NHS itself in order to provide proper accounting for the public money we spend and to have the right resources in the right place. We also use medical records in research to help find cures and treatments for illnesses. This helps us and other research bodies better understand diseases and determine which treatments work best under certain circumstances.
We will not share information that identifies you for any reason unless:
· You ask us to do so
· We ask and you give us specific permission
· We have to do this by law
· We have special permission for health or research purposes, or
· We have special permission because the interests of the public are thought to be of greater importance than your confidentiality—for example, if you had a serious medical condition that may put others you had come into contact with at risk
· When we use this information we make sure that, wherever possible, we do not use personal details such as your name and address, in order to protect your confidentiality. When releasing information to researchers, we give them only the minimum data necessary, and all their research is carefully vetted.
At Wickham Surgery there are 3 main organisations with which we may share your data without your consent;
1. Summary Care Record
There is a new national NHS Computer System called the Summary Care Record (SCR). This is an electronic record, which contains information about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had.
Having this information stored in one place makes it easier for healthcare staff to treat you in an emergency, or if your GP practice is closed.
If you do not wish to have your data uploaded as a Summary Care Record, please complete an opt out form and return it to the Practice. We will ensure that the correct codes are in place within your electronic medical record to prevent upload. A copy of your signed form will be retained electronically by the Practice as evidence of your preferences.
For existing patients it is different in that it is assumed that you want your record uploaded to the Central NHS Computer System unless you actively opt out.
For further information visit the HSCIC Website
If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery.
Care and Health Information Exchange
The Care and Health Information Exchange (CHIE) is a local combined electronic health record. It brings together information in your health records from different parts of the NHS in Hampshire.
The local National Health Service (NHS) has many different computer systems holding health records. Because not all of these systems are connected to each other, information about your care from one system is not automatically available in the others.
To help you and the doctors and nurses caring for you, we have developed the CHIE, which takes information from many of the health record systems across Hampshire, Isle of Wight and surrounding areas. It is designed to create a combined health record about you that can be looked at wherever you are being treated, with your consent. The health care staff who may need to look at your record must have your permission each time they want to look at it, unless you are so ill that you are not able to be asked.
At present the CHIE receives records from nearly two thirds of the GP practices within Hampshire and all of the hospitals. The information that is sent only contains the codes of problems and diagnoses, drugs prescribed, clinical measurements and pathology results etc. Detailed comments are not included.
Data sent to the CHIE includes blood test and other pathology results, X-Ray results and letters sent after Outpatient appointments or hospital admissions.
It is also used to improve future care for you, your family and for other patients. To keep your information safe it is moved to a separate database called “Care and Health Information Analytics” (CHIA) and changed so it cannot be used to identify you. Your data is never shared for the benefit of commercial companies like drug manufacturers. People who analyse data on CHIA do not have access, so cannot identify you.
You can find out more about this please visit their website www.CHIE.org.uk or call 0300 123 1519.
3. Medical Interoperability Gateway
The Medical Interoperability Gateway (MIG) is a system which allows GPs to see information recorded by the community teams and for the community teams to see information recorded by the GPs without having to log into a different computer systems. It was created to ensure that the community teams and GPs have access to a patient’s record so they are kept completely up to date and informed about a patient’s treatment and care.
The more information that is available to your clinician the greater the ability to provide you with the right care at the right time, without repeatedly asking the same questions that you may have already been asked by another professional in your care.
Only a summary of your medical record is available to the community teams and will include:-
- Patient details
- Summary – problems, medications, allergies and recent tests.
You will automatically be included in the MIG, however, if you do not want to have your information shared then please complete an opt-out form available at reception.
You can choose to opt out of one or all of these three initiatives, but you will be included if we do not received a signed form or request from you to opt out.